PNH Quick Facts
When PNH was first named, not much was known about it. The name literally means
episodic haemoglobin (a component of blood) in the urine, which occurs at night.
But actually, less than one third of people with PNH experience haemoglobin in their
urine at diagnosis.2 In fact, PNH is a complex disease that affects many
parts of the body and haemolysis (the destruction of red blood cells) does not only
happen at night — it happens all the time.